Resources and outputs
These resources have been developed through nearly 30 years of research at the Norah Fry Centre for Disability Studies. Although many of them were produced in earlier policy and practice contexts, they remain available as a record of the Centre’s work and as useful reference materials, but may not always reflect current policy, or up-to-date guidance and terminology.
Books, reports and learning packs
- Secret loves, hidden lives? Exploring issues for men and women with learning difficulties who are gay, lesbian or bisexual by David Abbott and Joyce Howarth.
- Making a Difference? Exploring the impact of multi-agency working on disabled children with complex health care needs, their families and the professionals that support them by Ruth Townsley, David Abbott and Debby Watson.
- Making Valuing People Work Strategies for change in services for people with learning disabilities by Rachel Fyson and Linda Ward.
- Committed to Change? Promoting the involvement of people with learning difficulties in staff recruitment by Ruth Townsley, Joyce Howarth, Mark Graham and Pete LeGrys. Published by the Policy Press.
- Pushing Open the Door. Housing options: the impact of a 'housing and support' advisory service. by Ken Simons. ISBN 1 86134 259 4. Available from Marston Book Services, PO BOX 269, Abingdon, Oxon, OX14 4YN. Telephone 01235 465500. 2000.
- Home, work and inclusion. The social policy implications of supported living and employment for people with learning disabilities. 1998. by Ken Simons. Published by YPS for the Joseph Rowntree Foundation.
- Living Support Networks: an evaluation of the services provided by KeyRing by Ken Simons.
- Getting Involved in Choosing Staff by Ruth Townsley, Joyce Howarth, Pete Le Grys and Margaret Macadam. A resource pack for supporters, trainers and staff working with people with learning difficulties.
- I'm not complaining but ... A flexible training resource on complaints procedures. by Ken Simons. ISBN 0 9530599 0 1. 1995.
- Still a Chance to Learn ? A report on the impact of the Further and Higher Education Act (1992) on education for adults with learning difficulties. By Margaret Macadam and Jeannie Sutcliffe. ISBN 1 872941 99 0.
- Invisible Victims: crime and abuse against adults with learning disabilities by Christopher Williams. A full report including training material (for police, service providers and lay advocates) and policy recommendations. Email: post@jkp.com
- Values and Visions. Changing Ideas in Services for People with Learning Difficulties. Edited by Terry Philpot and Linda Ward.
- Residential Short-term Care Services. Book of photocopiable materials needed to carry out a full and detailed evaluation of a service or to simply review one aspect such as 'partnership with parents' or 'quality of care'. ISBN 0 11 321972 5 by Carol Robinson, Clive Weston and John Minkes.
- Seen and Heard. Involving disabled children and young people in research and development projects by Linda Ward ISBN: 1 899987 48 7.
- Observing for Quality by Clive Weston, John Minkes and Carol Robinson. Observation Schedule contained in 'Quality in Day Services for Under-Fives' above but available separately, so it can be used as part of a full evaluation service or as a free standing tool. ISBN 0 11 321973 3.
- Quality in Day Services for Under Fives. Contains a wide range of photocopiable materials, including questionnaires, interview and observation schedules, which allow information to be collected from staff and parents. ISBN 0 11 321971 7 by Carol Robinson, Clive Weston and John Minkes.
- In their own right. The Carers Act and carers of people with learning disabilities. by Val Williams and Carol Robinson. ISBN 1 86134 231 4.
Online documents
Advocacy
Authors: Ruth Townsley, Anna Marriott and Linda Ward
- An evaluation of independent advocacy services: Report (PDF, 1,301kB)An evaluation of independent advocacy services: Report (PDF, 1,301kB)
- Executive summary Independent advocacy (PDF, 270kB)
- Executive summary easy read Independent Advocacy (PDF, 1,505kB)
- Framework Independent Advocacy (PDF, 1,103kB)
Parents
Authors: Beth Tarleton, Linda Ward and Joyce Howarth
Author: Beth Tarleton
Sexuality and relationships
Authors: David Abbott and Joyce Howarth
- Secret Loves press release (PDF, 89kB)
- Secret Loves summary (PDF, 67kB)
- Welsh Secret Loves summary (PDF, 68kB)
- Secret Loves easy read summary (PDF, 669kB)
- Welsh Secret Loves easy summary (PDF, 659kB)
- Jan's photostory-Secret Loves (PDF, 862kB). A photo story about a lesbian with learning difficulties.
- Phil's photostory-Secret Loves (PDF, 759kB). A photo story about a gay man with learning difficulties.
- Challenging Homophobia (PDF, 879kB). A booklet about challenging homophobia and heterosexism for people with learning difficulties and the staff that support them.
- Secret loves, hidden lives? (PDF, 853kB)
Death
Authors: Confidential Inquiry Team
Disabled children
Authors: Ruth Townsley, David Abbott and Debby Watson
- Making a Difference (PDF, 134kB). Exploring the impact of multi-agency working on disabled children with complex health care needs, their families and the professionals that support them by Ruth Townsley, David Abbott and Debby Watson. From £16.23.
Authors: David Abbott, Linda Ward and Jenny Morris
- Residential Schools (PDF, 35kB). Residential Schools and Disabled Children: decision making and experiences.
Authors: Debby Watson, Beth Tarleton and Anthony Feiler
- PIE questionnaire report (PDF, 538kB). Full report on the findings of the research on the involvement of children with little or no verbal communication (findings from the first phase of the research - a national (England) survey of schools).
- PIE summary (PDF, 96kB)
- I want to choose too resource pack (PDF, 1,328kB). A resource for teachers and others for including primary school age children with little or no speech in decision-making.
- Messages from the pie resource pack (PDF, 934kB). Messages from the resource I want to choose too.
Duchenne Muscular Dystrophy
Authors: Craig McLean, Liam McLean and David Abbott
Author: Dr Shawn Sobers
- Artist's statement (Office document, 21kB). Being a Man - Artist's Statement
Guidelines for accessible information
Authors: The Norah Fry Research Centre, RNIB , Black Health Agency, Jane Jones and Sue Thurman
Housing
Researchers
- Deborah Quilgars
- Eppie Leishman
- Mark Wilberforce
- Julie Rugg
- David Abbott
- Riverside
- Learning Disability England
- Housing LIN
- Stephen Lee Hodgkins
- York People First and My Life
- My Choice
Personalisation and direct payments
Authors: Pauline Heslop, Val Williams and Helen Spandler
Authors: Pauline Heslop and Val Williams
- Personalisation in mental health: Creating a vision, personalisation views (PDF, 112kB)
- Personalisation in mental health: Breaking down the barriers (PDF, 118kB)
Authors: David Abbott and others
- Living it Up (PDF, 696kB). Disabled you people speak their minds.
- Direct Payments findings (PDF, 61kB). Direct payments for young disabled people.
Authors: Skills for Support Research Team (Lisa Ponting, Kerrie Ford, Philippa Rudge and Val Williams)
- Its About Respect (PDF, 95kB). Full report on the second stage of the Skills for Support project.
- Easy version-It's About Respect (PDF, 279kB). Easy summary of the second stage of the Skills for Support project.
- Getting Good Support (PDF, 150kB). Easy summary of the second stage of the Skills for Support project.
- A new kind of support (PDF, 1,425kB). Easy summary of the video stage in the Skills for Support project.
Authors: David Abbott, Edmund Coleman-Fountain, and Harvey Humphrey and published in the Journal of Critical and Radical Social Work (2024)
Finance
Authors: Val Williams, David Abbott, Jackie Rodgers, Linda Ward and Debby Watson
- Money Rights and Risks report (PDF, 810kB). A scoping review of financial issues for people with learning disabilities in the UK.
- Money Rights and Risks summary (PDF, 326kB). Financial issues for people with learning disabilities in the UK - summary.
The interface between mental health and learning disability services
Authors: Ken Simons and Oliver Russell
Self injury
Authors: Pauline Heslop and Fiona Macaulay
- Report Hidden Pain (PDF, 929kB). Hidden Pain? Self injury and people with learning disabilities.
- Summary Hidden Pain (PDF, 188kB)
- Easy read summary Hidden Pain (PDF, 573kB)
Transition
Authors: Pauline Heslop, David Abbott, Lisa Johnson and Robina Mallet
- Help to move on report (PDF, 622kB). Help to Move On. Transition pathways for young people with learning difficulties in residential schools and colleges.
- Help to move on summary (PDF, 69kB)
Authors: Pauline Heslop, Robina Mallett, Ken Simons and Linda Ward.
- Bridging the divides summary (PDF, 190kB). Bridging the Divide. The experiences of young people with learning difficulties and their families at transition. A summary of the findings.
Author: Beth Tarleton
- The Road Ahead (PDF, 104kB). Information for young people with learning difficulties and their families at transition.
Authors: Sandra Dowling, Val Williams, Joe Webb, Vicky Mason-Angelo and Beth Richards, University of Bristol
Easy read information
Money
Parenting
Relationships
- Jan's photostory-Secret Loves (PDF, 862kB)
- Phil's photostory-Secret Loves (PDF, 759kB)
- Secret Loves easy read summary (PDF, 669kB)