The project, funded by the National Institute for Health and Care Research (NIHR), working in partnership with the James Lind Alliance (JLA), is being led by researchers at the Universities of Bristol and Exeter.
Why this matters
The number of people living with multiple long-term conditions (MLTC) is increasing, creating new challenges for individuals, families, carers, health and social care services, and wider society. Yet many important questions remain unanswered about how care for people with MLTC should be organised and delivered.
The MLTC Priority Setting Partnership (PSP) brings together people with lived experience, unpaid carers, healthcare professionals, social care staff, voluntary sector organisations, researchers, and policymakers to identify and prioritise unanswered questions that matter most.
About the survey
The short public survey will gather views from:
- people living with multiple long-term conditions
- family members and unpaid carers
- health, social care, voluntary sector, policy, and research professionals.
The first survey gathered people's experiences and questions about how care is organised and delivered for people living with multiple long-term conditions. These responses have been reviewed and brought together into 45 research questions covering a wide range of issues, including joined-up care, accessing support, communication between services, and involvement in decisions.
The second survey asks respondents to select up to 10 questions they believe are most important for future research. You do not need to have completed the first survey to take part.
The findings will be used to help identify the final research priorities, which will be discussed at a priority-setting workshop in November 2026, helping ensure that future studies focus on issues that are most important to those directly affected.
Dr Rachel Johnson, Associate Professor in Primary Care at the Centre for Academic Primary Care, University of Bristol, who is leading the survey, said: “Many people live with more than one long-term condition, yet health and care services are mostly designed for single conditions. People who live with long-term conditions, and the people who care for them, are often not involved in designing services. We want to hear about people's experience of services so we can make sure that future research addresses their priorities."
Take part in the second survey
Survey link: https://exe.qualtrics.com/jfe/form/SV_bqjdZQ2CgjU4m9w
Spread the word
The partnership is encouraging organisations, networks, and individuals to help share the survey widely to ensure diverse perspectives are represented.
Download the Survey 2 - Poster (PDF, 1,625kB).
Contact
For more information, please contact: mltc@exeter.ac.uk