COCOs questionnaires
If you are part of COCOs, you will sometimes be asked to fill out questionnaires about you or your child. This helps researchers build a more complete picture of health and development over time.
This page has information about COCOs questionnaires and who to contact if you have issues or concerns.
Why are you asking me to complete this questionnaire?
Children of the 90s is the only study in the world with such detailed health data on multiple generations of participants. Over the decades, our researchers have studied all aspects of health from asthma to diabetes, anxiety to pregnancy. Read more here: https://www.bristol.ac.uk/alspac/participants/discoveries/
Thanks to you and your family, your data is helping to improve the health and wellbeing of current and future generations.
Just like your clinic visits, your questionnaire responses are incredibly valuable to our research.
Do I have to complete the questionnaire?
No, it is entirely up to you if you want to complete the questionnaire or how many questions you wish to answer. Please skip any questions you do not wish to answer. If you need help to complete this questionnaire, please contact us via email info@childrenofthe90s.ac.uk or phone 0117 331 0010.
Is my data kept confidential?
As with all the data we collect from you, it will be processed using a unique ID number. All your personal details are removed, and researchers will not be able to link your answers back to you. Your data will only be shared with approved researchers for research that have been approved by Children of the 90s. Children of the 90s is compliant with General Data Protection Regulation (GDPR) and with the Data Protection Act (2018) for the collection, processing, storage, and disclosure of personal information.
Your responses will remain confidential. While the data will be analysed and shared in reports, no information that could identify you will be shared with your partner or with anyone outside the research team.
What can I do if I am affected by anything raised in this questionnaire?
There are some helplines listed on the helplines page which you may find helpful.
What are the possible benefits of completing the questionnaire?
The data you provide will contribute to a wide variety of research and your data will become part of the Children of the 90s resource.
What are the possible disadvantages or risks of taking part?
There are no expected risks from completing the questionnaire. However, some participants may find certain questions upsetting, as they cover topics related to pregnancy and birth. Please remember that you are free to skip any questions you do not wish to answer.
What if there is a problem?
If you are having difficulty accessing the online questionnaire, please try the following fixes:
Try opening the link in another browser such as Google Chrome or Firefox
- Check your internet connectivity before clicking the link
- Try using a different device to access the questionnaire via the link above
- Copy the link and paste into a browser instead of clicking on it from your email
If you have questions or concerns about any part of this questionnaire, please contact Children of the 90s (telephone 0117 331 0010, or email info@childrenofthe90s.ac.uk). If we are unable to answer your question or concern directly, we will refer this to the Children of the 90s Chief Operating Officer, or you can do this yourself:
Ms Lynn Molloy
Chief Operating Officer
University of Bristol
Level 1, Learning & Research Building 
Southmead Hospital 
Bristol BS10 5NB