- Funder: NIHR School for Social Care Research
- Lead applicant: Toby Williamson (Mental Health Foundation)
- Co-researchers: Marcus Jepson and Val Williams
- Research centre: Norah Fry Research Centre
The 2009 Direct Payments Guidance describes practice for making accessible direct payments for people who lack the capacity to consent to them by introducing a suitable person to receive and manage the payments. Commonly considered to confer increased choice and control to people with social care needs, we know less about how this legislation is working in practice for people with learning disabilities (PWL) and people with dementia (PWD) lacking capacity.
This study used individual semi-structured interviews and observational methods to explore separately with practitioners, suitable people, and PWLD and PWD in six English LAs their experiences of indirect payments. Two researchers carried out a thematic analysis on these interview data.
A practitioners’ guide was created, and is available here:
The summary of our findings can be downloaded from here:
Additionally, there are one or two published papers which might be of interest also:
Indirect Payments: when the Mental Capacity Act interacts with the personalisation agenda Jepson, M., Laybourne, A., Williams, V. J., Cyhlarova, E., Williamson, T. & Robotham, D. Sep 2016 In: Health and Social Care in the Community. 24, 5, p. 623-630 8 p.
Beginning to explore the experience of managing a direct payment for someone with dementia The perspectives of suitable people and adult social care Laybourne, A., Jepson, M. & Williams, V. J. 2014, Dementia (London) 2016 Jan;15(1):125-40. doi: 10.1177/1471301214553037. Epub 2014 Oct 2