Accessing the resource

The Cleft Collective provide a detailed observational resource for collaborators to research the environmental and genetic determinants of cleft lip and/or palate, and the outcomes for patients and families affected by cleft lip and/or palate.  

We encourage collaborators from all disciplines across the world to apply to use the resource.  Please read the access policy and data dictionary before submitting a proposal to The Cleft Collective Project Management Group email at:

A log of research proposals which have been approved by The Cleft Collective Project Management Group can be found here


Data Access policy (PDF, 264kB)

Data Dictionary (PDF, 3,961kB)

Research Proposal Form (Office document, 70kB)

Confidentiality form (Office document, 80kB)

Checklist for publishing papers (Office document, 57kB)


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