Data Collection and Questionnaires

Parent/Guardian completed Questionnaires
Questionnaires are sent to the biological mother and biological father/mother's partner at the following time points:
 
  • Baseline questionnaire: When the family are recruited into the study (antenatally or postnatally or at the child's Five-Year audit clinic)
  • Child is 18 months old
  • Child is 3 years old
  • Child is 5 years old
  • Child is 8 years old
  • Child is 10 years old
  • Child is 12 years old
  • Child is 15 years old

Baseline questionnaires are completed in a paper format. Follow-up questionnaires are completed either on paper or online. Online versions of the questionnaires are hosted on REDCap.

There is a 'Mother' version and a 'Father/Mother's partner' version.  

Please click on the link below to access the 'Mother' version of the questionnaires:

Baseline Questionnaires
Antenatal baseline questionnaire
Postnatal baseline questionnaire
Five-year baseline questionnaire
 
Follow-up Questionnaires
Eighteen month follow-up questionnaire
Three year follow-up questionnaire
Five year follow-up questionnaire
Eight year follow-up questionnaire
Ten year follow-up questionnaire
Twelve year follow-up questionnaire
 
Child completed questionnaires

Paper questionnaires are also sent to the child to complete at the following timepoints:

If you would like a copy of the Father/Mother's partner questionnaires, please email: cleft-collective@bristol.ac.uk 

Surgical questionnaires

Speech and Language Data Collection 

Assessment forms are completed by a Speech & Language Therapist:

Hearing records are completed by an audiologist when the child is 16 months and 3 years:

A speech and language questionnaire is completed by parents: