Any research output being placed in the public domain that describes The Cleft Collective must be reviewed by the Project Management Group to ensure the description is accurate. This includes publications which have not utilised the Cleft Collective resource.

The following wording is a suggested description of the study which may be used by researchers wanting to describe The Cleft Collective in their research outputs.

“The Cleft Collective Study is a large prospective cohort study of children born with cleft lip and/or palate, investigating causes of cleft, the best treatments and the impact of cleft on those affected and their families.¹ The resource comprises biological samples, speech audio recordings, medical and educational records and parent and child completed questionnaires. The resource is available for clinical and academic communities to access and use to address a range of cleft related research questions.  More information on the study and how to access the dataset is available at http://www.bristol.ac.uk/cleft-collective/professionals/access/. Initial funding for The Cleft Collective was provided by the Scar Free Foundation; additional funding was provided by The Underwood Trust and the Vocational Training Charitable Trust (VTCT).”

When describing The Cleft Collective, we request that you reference “The Cleft Collective: protocol for a longitudinal prospective cohort study”, citation and DOI can be found below:

1. Davies, A. J. V., Humphries, K., Lewis, S. J., Ho, K., Sandy, J. R., & Wren, Y. (2024). The Cleft Collective: protocol for a longitudinal prospective cohort study. BMJ Open, 14(7), e084737–e084737. https://doi.org/10.1136/bmjopen-2024-084737

Please submit any description of The Cleft Collective for approval by the Cleft Collective Project Management Group to cleft-collective@bristol.ac.uk