Publications
Publications by members of The Cleft Collective team and collaborators using Cleft Collective data can be found below.
Year of publication 2024
Plastics and Reconstructive Surgery - Global Open
Davies, A., Davies, A., Main, B., Wren, Y., Deacon, S., Cobb, A., McLean, N., David, D., Chummun, S.
Orthodontics and Craniofacial Research
Al-Hassani, M., Fowler, P., Wren, Y., Leary, S., Davies, A.
Year of publication 2023
Cleft Palate-Craniofacial Journal
Sainsbury, D., Williams, C., Butterworth, S., de Blacam, C., Fell, M., Mullen, J., Breakey, W., Murphy, C., Hodgkinson, P., Wren, Y.
The Cleft Palate Craniofacial Journal
Fell, M., Bradley, D., Chadha, A., Butterworth S., Davies, A., Russell, C., Richard, B., Wren, Y., Lewis, S., Chong, D.
British Dental Journal
Martin, S.V., Swan, M.
Year of publication 2022
Syndromes associated with Robin sequence: a national prospective cohort study
Archives of Disease in Childhood
Davies, A., Davies, A., Wren, Y., Deacon, S., Cobb, A., McLean, N., David, D. & Chummun, S.
Image data sharing for patients born with a cleft lip: A call for action to the UK cleft community
Journal of Plastic, Reconstructive & Aesthetic Surgery
Fell, M., Butterworth, S., Humphries K., Sainsbury, D., Mehendale, F. & Richard, B.
Prevalence and Factors Associated with Behavioural Problems in 5-year-old Children Born with Cleft Lip and/or Palate from the Cleft Collective
- Cleft Palate-Craniofacial Journal
- Berman, S., Sharp, G., Lewis, S., Blakey, R., Davies, A., Humphries, K., Wren, Y., Sandy, J. & Stergiakouli, E.
Parent/Caregiver Views of the Effectiveness of Speech-Language Pathology for Children Born With Cleft Palate Delivered via Telemedicine During COVID-19
- Language, Speech, and Hearing Services in Schools
- Southby, L., Harding, S., Davies, A., Lane, H., Chandler, H. & Wren, Y.
Current surgical practice for children born with a cleft lip and/or palate in the United Kingdom
- Cleft Palate-Craniofacial Journal
- Fell, M., Davies, A., Davies, A.,Chummun, S., Cobb, A., Moar, K. & Wren, Y.
Year of publication 2021
A Systematic Review of Early Speech and Language Therapy Interventions for Children with Cleft Palate
- International Journal of Language and communication disorders
- Lane, H., Harding, S. & Wren, Y.
The impact of changing cigarette smoking habits and smoke-free legislation on orofacial cleft incidence in the United Kingdom: evidence from two time-series studies
- Plos One
- Fell, M., Russell, C., Medina, J., Gillgrass, T., Chummun, S., Cobb, A., Sandy, J., Wren, Y., Wills, A.& Lewis, S
Speech input processing in children born with cleft palate: A systematic literature review with narrative synthesis
- International Journal of Language and communication disorders
- Southby, L., Harding, S., Phillips, V., Wren, Y., Joinson, C.
Exploring the Relationship Between Palatal Cleft Type and Width With the Use of Relieving Incisions in Primary Repair
- Cleft Palate-Craniofacial Journal
- Davies, A., Davies, A., Wren, Y., Deacon, S., Cobb, A., Chummun,S.
Exploring the relationship between conductive hearing loss and cleft speech characteristics in children born with cleft palate
- International Journal of Pediatric Otorhinolaryngology
- Baker, S., Wren, Y., Zhao, F., Cooper, F.
Intelligibility in 3-year-olds with cleft lip and/or palate using the Intelligibility in Context Scale: Findings from the Cleft Collective Cohort Study
- Cleft Palate-Craniofacial Journal
- Seifert, M., Davies, A., McLeod, S. & Wren, Y.
Early Communication Behaviors in Infants With Cleft Palate With and Without Robin Sequence: A Preliminary Study
- Cleft Palate-Craniofacial Journal
- van Eeden, S., Wren, Y., McKean, C., & Stringer, H.
Speech-Language Pathology provision during the COVID-19 pandemic for children born with cleft palate in the United Kingdom - Parent/Caregiver perspectives and experiences
- Perspectives of the ASHA Special Interest Groups
- Southby, L., Harding, S., Davies, A., Fell, M. & Wren, Y.
Maternal stressful life events during the periconceptional period and orofacial clefts: a systematic review and meta-analysis
- Cleft Palate-Craniofacial Journal
- Tran, C., Crawford, A. A., Hamilton, A. J., French, C. E., Wren, Y. E., Sandy, J. R., & Sharp, G. C.
Changes in the Transverse Dimension of the Maxillary Arch of 5-Year-Olds Born With UCLP Since the Introduction of Nationwide Guidance
- Cleft Palate-Craniofacial Journal
- Molyneaux, C., Sherriff, M., Wren, Y., Ireland, A., & Sandy, J.
Maternal cigarette smoking and cleft lip and palate: A systematic review and meta-analysis
- Cleft Palate-Craniofacial Journal
- Fell, M., Dack, K., Chummun, S., Wren, Y., Sandy, J & Lewis, S.
Year of publication 2020
Cleft lip/palate and educational attainment: cause, consequence or correlation? A Mendelian-randomization study
- International Journal of Epidemiology
- Dardani, C., Howe, L.J., Mukhopadhyay, N., Stergiakouli, E., Wren, Y., Humphries, K., Davies, A., Ho, K., Weinberg, S.M., Marazita, M.L., Mangold, E., Ludwig, K.U., Relton, C.L., Davey Smith, G., Lewis, S.J., Sandy, J., Davies, N.M. and Sharp, G.C.
Educational attainment and unilateral cleft lip and palate
- Cleft Palate-Craniofacial Journal
- Grewall, S.S., Ponduri, S., Wren, Y., Thompson, J.M.D., Ireland, AJ., Ness, AR., Sandy, J.R.
An exploratory study of speech and language therapy intervention for children born with cleft palate +/-lip
- Cleft Palate and Craniofacial Journal
- Williams, C., Harding, S., & Wren, Y.
Cleft lip and palate: Care configuration, national registration, and research strategies
- Journal of the World Federation of Orthodontists
- Sandy, J.R., Davies, A., Humphries, K., Ireland, A., Wren, Y.
- Child: care, health and development
- Costa, B., White, P., Kiff, J. D., Davies, A. and Stock, N.M.
Year of publication 2019
- Cleft Palate-Craniofacial Journal
- Stock, N.M., Costa, B., White, P. and Rumsey, N.
- Cleft Palate-Craniofacial Journal
- Costa, B., White, P. and Stock, N.M.
Prenatal alcohol exposure and facial morphology in a UK cohort
- Drug and alcohol dependence. 197, 42-47
- Howe LJ, Sharp GS, Hemani G, Zuccolo L,Richmond S, Lewis SJ.
Year of publication 2018
The Cleft Multidisciplinary Collaborative: Establishing a network to support cleft lip and palate research in the United Kingdom
- Cleft Palate-Craniofacial Journal
- Sainsbury, D.C.G., Davies, A., Wren, Y., Southby, L., Chadha, A., Slator, R., Stock, N.M. and the Cleft Multidisciplinary Collaborative.
Investigating the shared genetics of non-syndromic cleft lip/palate and facial morphology
- PLOS Genetics
- Howe, L.J., Lee, M.K., Sharp G.C., Davey Smith G., St Pourcain B., Shaffer J.R., Ludwig K.U., Mangold E., Marazita M.L., Feingold E., Zhurov A., Stergiakouli E., Sandy J., Richmond S., Weinberg S.M., Hemani G., Lewis S.J.
Teachers’ perspectives on the impact of cleft lip and/or palate during the school years
- Cleft Palate-Craniofacial Journal
- Stock, N.M., Ridley, M. and Guest, E.
An illustration of methodological challenges in craniofacial research: An example from the Psychology literature
- Cleft Palate-Craniofacial Journal
- Stock, N.M. and Feragen, K.J.B.
Factors affecting subjective satisfaction with appearance among patients with congenital craniofacial conditions: An application of Cash’s cognitive-behavioural model of body image development
- Body Image
- Feragen, K.J.B. and Stock, N.M.
Centralisation of cleft lip and palate services in the UK: The views of adult ‘returners’
- Cleft Palate-Craniofacial Journal
- Stock, N.M., Anwar, H., Sandy, J.R. and Rumsey, N.
Evidence for DNA methylation mediating genetic liability to non-syndromic cleft lip/palate
- Epigenomics
- Howe, L.J., Richardson, T, Arathimos, R, Alvizi, L, Passos-Bueno, MR, Stanier, P, Nohr, EA, Ludwig, K, Mangold, E, Knapp, M, Stergiakouli, E, St Pourcain, B, Davey Smith, G, Sandy, J, Relton, C, Lewis, S.J., Hemani, G & Sharp, G.C.
Facial Genetics: A Brief Overview
- Front Genet. 16;9:462
- Richmond S, Howe LJ, Lewis S, Stergiakouli E, Zhurov A.
Year of publication 2017
Setting up a cohort study in speech and language therapy (PDF, 176kB): Lessons from The UK Cleft Collective Speech and Language Study
- International Journal of Language and Communication Disorders
- Wren, Y.E., Humphries, K., Stock, N.M., Rumsey, N., Lewis, S., Davies, A., Bennett, R. & Sandy, S.
Young person and parent perspectives on the impact of cleft lip and/or palate within an educational setting
- Cleft Palate-Craniofacial Journal
- Stock, N.M. and Ridley, M.
Toward a conceptual and methodological shift in craniofacial research
- Cleft Palate-Craniofacial Journal
- Stock, N.M., Feragen, K.J.B., Moss, T.P. and Rumsey, N.
Recruiting to cohort studies in specialist healthcare services: Lessons learned from research nurses in UK cleft services
- Journal of Clinical Nursing
- Zucchelli, F., Humphries, K., Bennett, R., Davies, A., Sandy, J., Rumsey, N. and Stock, N.M.
Distinct DNA methylation profiles in subtypes of orofacial cleft
- Clinical Epigenetics
- Sharp G.C., Ho K., Davies A., Stergiakoul E., Humphries K., McArdle W., Sandy J., Davey Smith G., Lewis S.J. and Relton C.L.
Epigenetics and orofacial clefts: A brief introduction
- Cleft Palate-Craniofacial Journal
- Sharp, G.C., Stergiakouli, E., Sandy, J.Relton, C.L.
Speech, language and reading in 10-year-olds with cleft: Associations with teasing, satisfaction with speech and psychological adjustment
- Cleft Palate-Craniofacial Journal
- Feragen, K.J.B., Særvold, T., Aukner, R. and Stock, N.M.
Body Image and Quality of Life in Adolescents With Craniofacial Conditions
- Cleft Palate-Craniofacial Journal
- Crerand, C., Sarwer, D., Kazak, E., Clarke, A. and Rumsey, N.
Psychological adjustment to craniofacial conditions (excluding oral clefts): A review of the literature
- Psychology & Health, 32(3), pp. 253-288
- Feragen, K.J.B. and Stock, N.M.
Year of publication 2016
Self-perceptions of romantic appeal in adolescents with a cleft lip and/or palate
- Body Image, 18, pp. 143-152
- Feragen, K.B., Stock, N.M., Sharratt, N.D. and Kvalem, I.L.
Psychological adjustment to cleft lip and/or palate: A narrative review of the literature
- Psychology and Health, 31(7), pp. 777-813.
- Stock, N.M. and Feragen, K.J.B.
A longitudinal study of 340 young people with or without a visible difference: The impact of teasing on self-perceptions of appearance and depressive symptoms
- Body Image, 16, pp. 133-142.
- Feragen, K.J.B. and Stock, N.M.
Risk and protective factors at age 16: Psychological adjustment in adolescents with a cleft lip and/or palate
- Cleft Palate-Craniofacial Journal, 52(5), pp. 555-573.
- Feragen, K.J.B., Stock, N.M. and Kvalem, I.L.
Risk and protective factors at age 10: Psychological adjustment in children with a cleft lip and/or palate
- Cleft Palate-Craniofacial Journal, 52(5), pp. 555-573.
- Feragen, K.J.B. and Stock, N.M.
Adults' narratives of growing up with a cleft lip and/or palate: Factors associated with psychological adjustment
- Cleft Palate-Craniofacial Journal, 53(2), pp. 222-239.
- Stock, N.M., Feragen, K.J.B. and Rumsey, N.
Opportunities and challenges in establishing a cohort study: An example from cleft lip/palate research in the UK
- Cleft Palate-Craniofacial Journal, 53(3):317-25.
- Stock, N.M., Humphries, K., St Pourcain, B., Bailey, M., Persson, M., Ho, K.M., Ring, S., Marsh, C., Albery, L., Rumsey, N. and Sandy, J.
Achieving consensus in the measurement of psychological adjustment to cleft lip and/or palate
- Cleft Palate-Craniofacial Journal, 53(4), pp. 421-426.
- Stock, N.M., Hammond, V., Owen, T., Kiff, J., Shanly, A. and Rumsey, N.
DNA Methylation in Newborns and Maternal Smoking in Pregnancy: Genome-wide Consortium Meta-analysis
- American Journal of Human Genetics, 7;98(4), pp. 680-96
- Joubert, B.R., Felix J.F., Yousefi P., Bakulski K.M., Just A.C., Breton C. et al.
Year of publication 2015
The psychological impact of cleft lip and/or palate on unaffected siblings (e-pub ahead of print, 2015)
- Cleft Palate-Craniofacial Journal.
- Stock, N.M., Stoneman, K., Cunniffe, C. and Rumsey, N.
The effectiveness of psychosocial intervention for individuals with cleft lip and/or palate and their parents: A systematic review
- Cleft Palate-Craniofacial Journal, 52(3), pp. 301-310.
- Norman, A., Persson, M., Stock, N.M., Rumsey, N., Sandy, J., Waylen, A., Edwards, Z., Hammond, V.J., Partridge, L. and Ness, A.
Starting a family: The experience of parents with CL/P
- Cleft Palate-Craniofacial Journal, 52(4), pp. 425-436.
- Stock, N.M. and Rumsey, N.
"It doesn’t all just stop at 18." Psychological adjustment and support needs of adults born with cleft lip/palate
- Cleft Palate-Craniofacial Journal, 52(5), pp. 543-554.
- Stock, N.M., Feragen, K.J.B. and Rumsey, N.
Parenting a child with a cleft: The father's perspective
- Cleft Palate-Craniofacial Journal, 52(1), pp. 31-43.
- Stock, N.M and Rumsey, N.
The importance of integration of stakeholder views in core outcome set development: otitis media with effusion in children with cleft palate
- Plos One, 10(6): e0129514.
- Harman, N., Bruce, I., Kirkham, J., Tierney, S., Callery, P., O'Brien, K., Bennett, A., Chorbachi, R., Hall, P., Harding-Bell, A., Parfect, V., Rumsey, N., Sell, D., Sharma, R., Williamson, P.
Year of publication 2014
Toward a reconsideration of inclusion and exclusion criteria in cleft lip and palate: Implications for psychological research
- Cleft Palate-Craniofacial Journal, 51(5), pp. 570-579.
- Feragen, K.J.B., Stock, N.M. and Rumsey, N.
When there is more than a cleft: Psychological adjustment when a cleft is associated with an additional condition
- Cleft Palate-Craniofacial Journal, 51(1), pp. 5-14.
- Feragen, K.J.B., Stock, N.M. and Rumsey, N.
A review of outcome measures used in cleft care
- Journal of Orthodontics, 41(2), pp. 128-140.
- Jones, T., Alghatam, R., Atack, N., Deacon, S., Power, R., Albery, L., Ireland, T., Sandy, J.R.
Year of publication 2013
Young people’s perceptions of visible difference
- Diversity and Equality in Health and Care, 10(1): 41-51.
- Stock, N.M., Whale, K., Jenkinson, E., Rumsey, N. and Fox, F.
Year of publication 2012
Using service rationalisation to build a research network: lessons from the centralisation of UK services for children with cleft lip and palate
- British Dental Journal, 212(11), pp. 553-555.
- Sandy, J., Rumsey, N., Persson, M., Waylen, A., Kilpatrick, N., Ireland, T. and Ness, A.
Treatment outcome for children born with cleft lip and palate
- Frontiers of Oral Biology, 16, pp. 91-100.
- Sandy, J., Kilpatrick, N., Ireland, A.
Approaching parents to take part in a cleft gene bank: a qualitative pilot study
- Cleft Palate-Craniofacial Journal, 49(4), pp. 425-36.
- Williams, L., Dures, E., Waylen, A., Ireland, T., Rumsey, N., Sandy, J.
Do I have enough time? The impact of recruiting patients to a randomised controlled trial at recruiting centres
- British Dental Journal, 213(9), pp. 467-70.
- Ellis, P.E., Bradley, R.L., Sandy, J.R., Deacon, S.A., Griffiths, H.S., Atack, N.E., Moore, M.B., House, K.A., Wenger, N.A., Worth, V., Ireland, A.J.
Educational achievements in Pierre Robin Sequence
- Journal of Plastic Surgery and Hand Surgery, 47(1), pp. 36-39.
- Persson, M., Sandy, J., Kilpatrick, N., Becker, M., Svensson, H.
The 5-year-olds' index: Determining the optimal format for rating dental arch relationships in unilateral cleft lip and palate
- European Journal of Orthodontics, 34(6), pp. 768-72.
- Chawla, O., Deacon, S.A., Atack, N.E., Ireland, A.J., Sandy, J.R.