March 2026

At the March 2026 ALSPAC Participant and Public Advisory Panel (APPAP) meeting, members reviewed ongoing work and provided feedback on new research and communications.

An update was shared on the recent reconsenting project, where over 20,000 participants were contacted. Very few concerns were raised, and only a small number chose to withdraw, showing strong continued support for the study.

Researchers also presented a new study looking at how children’s thinking, language and self-control develop in the early years. The group discussed how to make study information clearer and more accessible, suggesting shorter summaries, videos and audio formats. They also raised the importance of fair travel support so that all families can take part.

The panel reviewed plans for a newsletter and FAQ’s about possible brain donation. Members supported a sensitive, informative approach, with clear explanations and reassurance about dignity and family involvement. This proposal will now go to the ALSPAC ethics committee for approval.

The group also discussed plans to use health data to identify when participants may be expecting a baby, so they can be invited to join the next generation study. Feedback confirmed that the proposed wording felt appropriate and not intrusive.

Finally, updates were shared on data security communications and recruitment of new public panel members.