April 2025

The April online APPAP meeting saw a fantastic turnout, with 10 out of 15 members participating. We reviewed feedback from two researchers who had recently sought advice from APPAP. The first researcher focused on new liver health research, while the second worked on creating FAQs for a potentially sensitive academic publication. Both projects progressed positively, and the researchers expressed their gratitude for APPAP's valuable contributions.

Two main topics were discussed. The first focused on the questionnaire strategy for the G2 (children of the children) questionnaires. APPAP was generally pleased with the plans for the G2 questionnaire content and design. They emphasized the importance of combining and shortening questionnaires to reduce participant burden, especially during such a busy time in people's lives.

The second discussion centred on a new research proposal investigating mental health in the G1 cohort. This complex study involves collecting data via smartphones several times a day for six weeks, accompanied by a new incentive scheme tailored to the nature of the data collection. APPAP generally approved of the project, particularly appreciating the data collection approach, which aligns well with participants' busy lives. There was also a discussion about the importance of data protection, with the researcher emphasizing that this was the most critical issue addressed.

APPAP provided valuable feedback to the researchers. We will inform the group of what changes have been made to these two studies as a result of their feedback.

The next meeting is in June 2025.