Testimonials, publications and media
Academic outputs:
- Anderson E, Parslow R, Hollingworth W, Mills N, Beasant L, Gaunt D, Metcalfe C, Kessler D, Macleod J, Pywell S, Pitts K, Price S, Stallard P, Knoop H, Van de Putte E, Nijhof S, Bleijenberg G, Crawley E Recruiting Adolescents With Chronic Fatigue Syndrome/Myalgic Encephalomyelitis to Internet-Delivered Therapy: Internal Pilot Within a Randomized Controlled Trial, J Med Internet Res 2020;22(8):e17768 DOI: 10.2196/17768
STUDY PROTOCOL:
- Baos, S., Brigden, A., Anderson, E. et al. Investigating the effectiveness and cost-effectiveness of FITNET-NHS (Fatigue In Teenagers on the interNET in the NHS) compared to Activity Management to treat paediatric chronic fatigue syndrome (CFS)/myalgic encephalomyelitis (ME): protocol for a randomised controlled trial. Trials 19, 136 (2018). https://doi.org/10.1186/s13063-018-2500-3
- Anderson, E., Gaunt, D., Metcalfe, C. et al. Investigating the effectiveness and cost-effectiveness of FITNET-NHS (Fatigue In Teenagers on the interNET in the NHS) compared to activity management to treat paediatric chronic fatigue syndrome (CFS)/myalgic encephalomyelitis (ME): amendment to the published protocol. Trials 20, 750 (2019). https://doi.org/10.1186/s13063-019-3895-1
FITNET-NHS featured in the Media:
- 'Worries that keep you awake at night', NIHR Blog, May 2018
- A small selection from the national media features on study launch, Nov 2016
 |
 |
 |
 |
Testimonials from families about the opportunity to take part:
|
“I think we'd have had to have waited a lot longer to get any help at all, whereas, this trial it meant that we got help straight away.”
(parent)
|
|
“I liked the idea of it all being online, I think going to the appointments of different things can be difficult. Whereas this I can just do whenever I fancy.”
(child)
|
|
“either way I know I’m gonna get some sort of treatment out of it, some benefit. […] which is better than nothing “
(child)
|
|
“I think that was the other thing that kind of attracted me […] it was like well if it means that she hasn’t got to actually go anywhere then yeah obviously that’s beneficial“
(parent)
|
|
“We were really pleased, it was a little bit like a lifeline, knowing that we could hopefully get some treatment for (name) and hopefully see an improvement in his health as well.”
(parent)
|
|
“It was just interesting because [...] especially when the funding was cut, there was nothing I could do and it’s frustrating, but [...] when I saw the study at least it’s like an opportunity to try and manage my condition.”
(child)
|