Publications by members of The Cleft Collective team can be found below.

Year of publication 2017

Setting up a cohort study in speech and language therapy (PDF, 176kB): Lessons from The UK Cleft Collective Speech and Language Study
  • International Journal of Language and Communication Disorders
  • Wren, Y.E., Humphries, K., Stock, N.M., Rumsey, N., Lewis, S., Davies, A., Bennett, R. & Sandy, S.
Recruiting to cohort studies in specialist healthcare services: Lessons learned from research nurses in UK cleft services
  • Journal of Clinical Nursing
  • Zucchelli, F., Humphries, K., Bennett, R., Davies, A., Sandy, J., Rumsey, N. and Stock, N.M.
Distinct DNA methylation profiles in subtypes of orofacial cleft
  • Clinical Epigenetics
  • Sharp G.C., Ho K., Davies A., Stergiakoul E., Humphries K., McArdle W., Sandy J., Davey Smith G., Lewis S.J. and Relton C.L.
Epigenetics and orofacial clefts: A brief introduction
  • Cleft Palate-Craniofacial Journal
  • Sharp, G.C., Stergiakouli, E., Sandy, J.Relton, C.L.

Year of publication 2016

Self-perceptions of romantic appeal in adolescents with a cleft lip and/or palate
  • Body Image, 18, pp. 143-152
  • Feragen, K.B., Stock, N.M., Sharratt, N.D. and Kvalem, I.L.
Psychological adjustment to cleft lip and/or palate: A narrative review of the literature
  • Psychology and Health, 31(7), pp. 777-813.
  • Stock, N.M. and Feragen, K.J.B.
A longitudinal study of 340 young people with or without a visible difference: The impact of teasing on self-perceptions of appearance and depressive symptoms
  • Body Image, 16, pp. 133-142.
  • Feragen, K.J.B. and Stock, N.M.
Risk and protective factors at age 16: Psychological adjustment in adolescents with a cleft lip and/or palate
  • Cleft Palate-Craniofacial Journal, 52(5), pp. 555-573.
  • Feragen, K.J.B., Stock, N.M. and Kvalem, I.L.
Risk and protective factors at age 10: Psychological adjustment in children with a cleft lip and/or palate
  • Cleft Palate-Craniofacial Journal, 52(5), pp. 555-573.
  • Feragen, K.J.B. and Stock, N.M.
Adults' narratives of growing up with a cleft lip and/or palate: Factors associated with psychological adjustment
  • Cleft Palate-Craniofacial Journal, 53(2), pp. 222-239.
  • Stock, N.M., Feragen, K.J.B. and Rumsey, N.
Opportunities and challenges in establishing a cohort study: An example from cleft lip/palate research in the UK
  • Cleft Palate-Craniofacial Journal, 53(3):317-25.
  • Stock, N.M., Humphries, K., St Pourcain, B., Bailey, M., Persson, M., Ho, K.M., Ring, S., Marsh, C., Albery, L., Rumsey, N. and Sandy, J.
Achieving consensus in the measurement of psychological adjustment to cleft lip and/or palate
  • Cleft Palate-Craniofacial Journal, 53(4), pp. 421-426.
  • Stock, N.M., Hammond, V., Owen, T., Kiff, J., Shanly, A. and Rumsey, N.

Year of publication 2015

The psychological impact of cleft lip and/or palate on unaffected siblings (e-pub ahead of print, 2015)
  • Cleft Palate-Craniofacial Journal.
  • Stock, N.M., Stoneman, K., Cunniffe, C. and Rumsey, N.
Speech, language and reading in 10-year-olds with cleft: Associations with teasing, satisfaction with speech and psychological adjustment (e-pub ahead of print, 2015)
  • Cleft Palate-Craniofacial Journal.
  • Feragen, K.J.B., Særvold, T., Aukner, R. and Stock, N.M.
The effectiveness of psychosocial intervention for individuals with cleft lip and/or palate and their parents: A systematic review
  • Cleft Palate-Craniofacial Journal, 52(3), pp. 301-310.
  • Norman, A., Persson, M., Stock, N.M., Rumsey, N., Sandy, J., Waylen, A., Edwards, Z., Hammond, V.J., Partridge, L. and Ness, A.
Starting a family: The experience of parents with CL/P
  • Cleft Palate-Craniofacial Journal, 52(4), pp. 425-436.
  • Stock, N.M. and Rumsey, N.
"It doesn’t all just stop at 18." Psychological adjustment and support needs of adults born with cleft lip/palate
  • Cleft Palate-Craniofacial Journal, 52(5), pp. 543-554.
  • Stock, N.M., Feragen, K.J.B. and Rumsey, N.
Parenting a child with a cleft: The father's perspective
  • Cleft Palate-Craniofacial Journal, 52(1), pp. 31-43.
  • Stock, N.M and Rumsey, N.
The importance of integration of stakeholder views in core outcome set development: otitis media with effusion in children with cleft palate
  • Plos One, 10(6): e0129514.
  • Harman, N., Bruce, I., Kirkham, J., Tierney, S., Callery, P., O'Brien, K., Bennett, A., Chorbachi, R., Hall, P., Harding-Bell, A., Parfect, V., Rumsey, N., Sell, D., Sharma, R., Williamson, P.

Year of publication 2014

Toward a reconsideration of inclusion and exclusion criteria in cleft lip and palate: Implications for psychological research
  • Cleft Palate-Craniofacial Journal, 51(5), pp. 570-579.
  • Feragen, K.J.B., Stock, N.M. and Rumsey, N.
When there is more than a cleft: Psychological adjustment when a cleft is associated with an additional condition
  • Cleft Palate-Craniofacial Journal, 51(1), pp. 5-14.
  • Feragen, K.J.B., Stock, N.M. and Rumsey, N.
A review of outcome measures used in cleft care
  • Journal of Orthodontics, 41(2), pp. 128-140.
  • Jones, T., Alghatam, R., Atack, N., Deacon, S., Power, R., Albery, L., Ireland, T., Sandy, J.R.

Year of publication 2013

Young people’s perceptions of visible difference
  • Diversity and Equality in Health and Care, 10(1): 41-51.
  • Stock, N.M., Whale, K., Jenkinson, E., Rumsey, N. and Fox, F.

Year of publication 2012

Using service rationalisation to build a research network: lessons from the centralisation of UK services for children with cleft lip and palate
  • British Dental Journal, 212(11), pp. 553-555.
  • Sandy, J., Rumsey, N., Persson, M., Waylen, A., Kilpatrick, N., Ireland, T. and Ness, A.
Treatment outcome for children born with cleft lip and palate
  • Frontiers of Oral Biology, 16, pp. 91-100.
  • Sandy, J., Kilpatrick, N., Ireland, A.
Approaching parents to take part in a cleft gene bank: a qualitative pilot study
  • Cleft Palate-Craniofacial Journal, 49(4), pp. 425-36.
  • Williams, L., Dures, E., Waylen, A., Ireland, T., Rumsey, N., Sandy, J.
Do I have enough time? The impact of recruiting patients to a randomised controlled trial at recruiting centres
  • British Dental Journal, 213(9), pp. 467-70.
  • Ellis, P.E., Bradley, R.L., Sandy, J.R., Deacon, S.A., Griffiths, H.S., Atack, N.E., Moore, M.B., House, K.A., Wenger, N.A., Worth, V., Ireland, A.J.
Educational achievements in Pierre Robin Sequence
  • Journal of Plastic Surgery and Hand Surgery, 47(1), pp. 36-39.
  • Persson, M., Sandy, J., Kilpatrick, N., Becker, M., Svensson, H.
The 5-year-olds' index: Determining the optimal format for rating dental arch relationships in unilateral cleft lip and palate
  • European Journal of Orthodontics, 34(6), pp. 768-72.
  • Chawla, O., Deacon, S.A., Atack, N.E., Ireland, A.J., Sandy, J.R.
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