Participants should be a minimum of 18 years of age.
The survey will work on a mobile phone, but is much easier to complete on laptop, PC, or tablet (and landscape view is better for phones).
The survey measures many different elements of well-being and life experience and thus may take around 45 minutes to complete, but there are options to pause and return. We ask a lot of questions because there are many issues to consider, and it is important to understand how these issues relate to each other. In contrast, many studies only focus on a few measures.
Background and Aims of the Research
- We are interested in developing a detailed understanding of how caring for someone living with dementia might affect well-being. To do this we also need a group of "control" people who are not caring for someone living with dementia or providing long term care for someone living with another physical or mental health condition.
- We have devised a new and comprehensive measure of well-being. Many studies that propose to study well-being only measure a small fraction of the dimensions of well-being, like stress anxiety, and depression.
- Short questionnaires asking about general positive mood or quality of life are often used. This narrow approach can miss important consequences of being a carer
- So our approach is to measure a wide range of well-being dimensions but using a small number of questions for each dimension. For example, happiness, anxiety, confidence, anger, resilience, financial security, fatigue, sleep quality, satisfaction with social support, motivation, depression, a sense of having control over one’s life, and more.
What will you be asked to do in this study
As a Dementia Carer
If you are caring for someone who is living with dementia we will ask some general questions about you and about your well-being and some questions about your experiences as a carer.
As a Non Carer/Control Group
If you are not caring for someone with dementia we will ask some general questions about you and about your well-being. For this study, we need a control group who are not caring who are not caring for someone living with dementia or providing other long term care.
It would really help us if you could pass details of this study to other carers, or people who are not carers so that we can compare well-being in carers versus non carers. We need an age-matched sample of non-carers, and because people often know people of similar age to them, you might be able to really help us out!
As a Dementia Carer
If you are caring for someone who is living with dementia we will ask some general questions about you and about your well-being and some questions about your experiences as a carer.
As a Non Carer/Control Group
If you are not caring for someone with dementia we will ask some general questions about you and about your well-being. For this study, we need a control group who are not caring who are not caring for someone living with dementia or providing other long term care.
It would really help us if you could pass details of this study to other carers, or people who are not carers so that we can compare well-being in carers versus non carers. We need an age-matched sample of non-carers, and because people often know people of similar age to them, you might be able to really help us out!