ICECAP-SCM

The ICECAP-SCM (Supportive Care Measure) descriptive system was developed in the UK using in-depth interviews with people from three groups across the dying trajectory: older people (1) within the general population, (2) living in residential care and (3) receiving palliative care to generate conceptual attributes, with further semi-structured interviews to generate meaningful wording.  Analysis used constant comparison.  Index values for the ICECAP-SCM have been estimated from a best-worst scaling study of the UK general population.  Anchors for the measure are at full capability and no capability.  Qualitative studies of the validity of the ICECAP-SCM have been conducted with samples of these at the end of life facing different dying trajectories, and with both individual and proxy completion, and quantitative evidence is starting to be generated.

Before using ICECAP-SCM in your study please register with us first. You do not have to pay to use the measure, but please complete the ICECAP -SCM User Agreement Form (Office document, 32kB)

Please email a copy of the completed form to Katie Breheny.  Once registered, you will be sent a version of the instrument in MS Word. A proxy version of the questionnaire is also available upon registration.

ICECAP-SCM Sample (PDF, 156kB)‌‌

Please remember to register with us before you start, by using the ICECAP - SCM User Agreement (Office document, 31kB)

Once you have completed the form please email a copy to Katie Breheny.

See Translations here

Information about the general ‘EconEndLife’ framework, within which the ICECAP-SCM and ICECAP-CPM can be applied, can be found in:

• Coast J, Bailey C, Canaway A, Kinghorn P.  Measuring and valuing outcomes for care at the end of life: the capability approach. In Round J (Ed.) Care at the End of Life: An Economic Perspective.  Heidelberg: Springer.  2016.  pp.89-101
• Coast J (2014) Strategies for the economic evaluation of end of life care: Making a case for the capability approach. Expert review of Pharmacoeconomics & Outcomes Research. 14(4): 473-482
• Kinghorn P & Coast J. A Health Economics Response to the Review of the Liverpool Care Pathway. Journal of Palliative Medicine. December 2013, 16(12):1614-1616.

The selection of the attributes for ICECAP-SCM (Supportive Care Measure) is described in:

• Sutton E, Coast J.  “Development of a supportive care measure for economic evaluation of end-of-life care, using qualitative methods”.  Palliative Medicine.  2014;28:151-157.  doi: 10.1177/0269216313489368

Pilot valuation work for the ICECAP-SCM is described in:

• Coast J, Huynh E, Kinghorn P, Flynn T (2016) “Complex Valuation: Applying ideas from the complex intervention framework to valuation of a new measure for end of life care”, PharmacoEconomics, 34, 499-508.

The ICECAP-SCM value set is reported in:

• Huynh E, Coast J, Rose J, Kinghorn P, Flynn T. Values for the ICECAP-Supportive Care Measure (ICECAP-SCM) for use in economic evaluation at end of life. Social Science & Medicie. 2017 Sep;189:114-128. doi: 10.1016/j.socscimed.2017.07.012. Epub 2017 Jul 21. PMID: 28797940.

Papers relating to the use of the ICECAP-SCM:

• Bailey C, Orlando R, Kinghorn P, Armour K, Perry R, Jones L, Coast J. (2016) “The ICECAP-SCM tells you more about what I’m going through” - Measuring quality of life amongst patients receiving supportive and palliative care.  Palliative Medicine. Online first. 1-11, DOI: 10.1177/0269216315624890