The GenROC study has closed for recruitment. The aim of the study was to recruit 500 children with specified rare genetic neurodevelopmental disorders from across the UK by 2027. The team are delighted that they have had such good interest from families which has meant they have recruited over target which has resulted in the study being able to close to recruitment early and over target. 547 children have been recruited in total! Thank you to all the families and clinicians from across the UK who have contributed and we look forward to presenting results in the future.
The GenROC study has closed for recruitment
1 May 2025