Information for family carers


The LeDeR progamme encourages reviewers to involve families throughout the whole review process, or as much as families feel able or want to be involved. As a family member, you are likely to have the greatest knowledge of the person who has died, to know a great deal about their care and support, and be able to help us understand the sequence of events leading to your relative’s death.

Your unique perspective can tell us what could make a difference to the lives of other people with learning disabilities. We know this will be a sad and difficult time for you but hope you will feel able to take part. You will be treated with sensitivity and respect, and invited to make recommendations based on your experience.

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