About the programme

The Learning Disabilities Mortality Review (LeDeR) programme is funded by NHS England and commissioned by the Healthcare Quality Improvement Partnership (HQIP). It is the first national programme of its kind in the world.

Its overall aims are:

  • To support improvements in the quality of health and social care service delivery for people with learning disabilities.
  • To help reduce premature mortality and health inequalities for people with learning disabilities.

The programme was established in response to the recommendations of the Confidential Inquiry into the premature deaths of people with learning disabilities (CIPOLD). 

CIPOLD reported that for every person in the general population who died from a cause of death amenable to good quality care, three people with learning disabilities would do so. More recently, analysis of data from the Primary Care Research Database suggested that the all-cause standardised mortality ratio for people with learning disabilities was 3.18, and that people with learning disabilities had a life expectancy 19.7 years lower than people without learning disabilities.

The LeDeR programme contributes to improvements in the quality of health and social care for people with learning disabilities in England by supporting local areas to carry out reviews of deaths of people with learning disabilities (aged 4 years and over) using a standardised review process. This enables them to identify good practice and what has worked well, as well as where improvements to the provision of care could be made. Recurrent themes and significant issues are identified and addressed at local, regional and national level.

What is LeDeR?

LeDeR roles and responsibilities

Core principles and values

Reviews of deaths

Detailed review process

Information security

Information for family carers

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