Professor Pauline Heslop
B.Sc., Ph.D.(Bristol), RGN, RSCN
- learning disability
- intellectual disability
Professor of Intellectual Disabilities StudiesSchool for Policy Studies
Current research projects
Pauline is currently the Programme Manager for the Learning Disabilities Mortality Review (LeDeR) Programme for England.
Pauline was the lead researcher for the Confidential Inquiry into Premature Deaths in People with Learning Disabilities, commissioned by the Department of Health from 2010 – 2013, which reported its findings in March 2013. The Inquiry was undertaken in partnership with colleagues from Community-based Medicine at the University of Bristol, Bristol PCT and the Royal College of General Practitioners.
Pauline was the Principal Investigator on the 'Hidden pain?' research project, which was about the perspectives of people with learning disabilities who self-injure. The research was undertaken in partnership with Bristol Crisis Service for Women from 2006-2009.
Pauline was also a co-investigator on a project funded by the Department of Health and managed by Mind, the national mental health charity. ‘Putting us First’ aimed to increase the number of people with mental health support needs receiving a personalised approach to their support. The project ran from 2008-2010.
Since working at Norah Fry, Pauline has also completed research projects about befriending and short-break services, transition from children’s to adults services, and understandings of psychotropic medications by people with learning difficulties prescribed this treatment.
02/10/2017 to 31/10/2019
Learning disability and Northern Ireland: Achieving proportionate universalism through administrative data research
DescriptionThis project will use data-linkage techniques to develop the most comprehensive population-based estimates of the prevalence of learning disability (as recorded in the 2011 Census), and the variation of these…
01/10/2017 to 30/04/2019
DescriptionThe Learning Disabilities Mortality Review (LeDeR) Programme is delivered by the University of Bristol. It is commissioned by the Healthcare Quality Improvement Partnership (HQIP) on behalf of NHS England.
01/06/2015 to 31/05/2020
DescriptionIt is based at Norah Fry Centre for Disability Studies at the University of Bristol, and led by Val Williams. Our work also involves key partners including Disability Rights UK…
01/04/2015 to 31/05/2018
ESRC seminar series: International comparisons of mortality data about people with intellectual disabilities
DescriptionThis three-year seminar series brings together practitioners, policy-makers and academics interested in better understanding patterns and trends in the mortality of people with intellectual disabilities.
The aim of the seminars is…
01/10/2014 to 30/09/2017
Using grounded theory to establish the views of looked after children, specifically around their experiences in the education system
Health and social care access for adults with learning disabilities across the UK during the COVID-19 pandemic in 2020
Tizard Learning Disability Review
- Accepted/In press
Prevalence estimation of intellectual disability using national administrative and household survey data
International Journal of Population Data Science
Coronavirus and People with Learning Disabilities Study: Wave 1 Results, March 2021, Full Report
- Commissioned report
Promoting the Health and Well-Being of People with Learning Disabilities
- Chapter in a book
Journal of Intellectual Disabilities
- E-pub ahead of print