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UK’s hidden disability: new codes to help thousands with Fetal Alcohol Spectrum Disorder

Press release issued: 31 October 2024

People living with Fetal Alcohol Spectrum Disorder (FASD) — one of the most common yet under-recorded neurodevelopmental conditions worldwide — can now have the condition accurately recorded in their medical records thanks to new clinical codes.

Although an estimated 2 to 4% of children in the general UK population and up to 27% of children in care have this disorder, few have the diagnosis documented in their medical records. This lack of proper documentation can lead to significant challenges for individuals with FASD and missed opportunities for better care, research and treatment.

For the first time, thanks to a project led by the University of Bristol, clinicians can now record a diagnosis using codes that represent the full spectrum of FASD within patients’ electronic medical records.

Read the full University of Bristol news item

For further information on this project and the new SNOMED CT codes, please visit the website here.

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