Public Advisory Group
As we all know, Digital Technologies are increasingly part of our everyday lives - in the form of laptops, mobile phones, wearables and even smart home devices. These devices are therefore well-placed to record data about hugely-important long term health conditions such as dementia, diabetes, arthritis, heart disease and so on. That data is really important because it can be used to improve the management of the condition, to diagnose it or perhaps even cure it.
While we recognise the potential of the technology, like any new technology there are risks attached. Data capture from these devices is intrusive by definition and everyone working in this space will be aware of the complexities of user acceptance that and the serious ethical responsibility that arises to our research participants.
For this reason, Bristol's Digital Health activities puts public participation at the heart of everything we do - whether designing a new research proposal, carrying out a funded research project, designing a device or exploring issues such as ethics and inclusion. Bristol's Digital Health Public Advisory Group has 5 years' experience of reflecting community views into our Digital Health research - they are important and valued partners for the research teams and formally represented on our Advisory Board.
If you are a member of the public interested in the acceptabilty, public engagement, citizen science, participation or ethics of Digital Health trials please do get in touch and we will be happy to involve you formally or informally in this especially exciting part of our research.
If you would like more information on how you can get involved please contact us here!