Thank you for showing interest in the GenROC study. We are a team of researchers at the University of Bristol interested in neurodevelopmental genetic conditions.  The study is led by Dr Karen Low, who is a consultant clinical geneticist who cares for children with these sorts of conditions. Through the GenROC study we hope to improve our understanding of how rare genetic syndromes affect the way children grow, their physical health and their development.  We also hope to work with parents to understand new ways we can work together to improve our knowledge (such as through social media).