Resources

Books, reports and learning packs

  • Secret loves, hidden lives? Exploring issues for men and women with learning difficulties who are gay, lesbian or bisexual by David Abbott and Joyce Howarth. £15.19
  • Making a Difference? Exploring the impact of multi-agency working on disabled children with complex health care needs, their families and the professionals that support them by Ruth Townsley, David Abbott and Debby Watson. From £16.23
  • Making Valuing People Work Strategies for change in services for people with learning disabilities by Rachel Fyson and Linda Ward.
    £16.14
  • Committed to Change? Promoting the involvement of people with learning difficulties in staff recruitment by Ruth Townsley, Joyce Howarth, Mark Graham and Pete LeGrys. Published by the Policy Press. From £10.00
  • Pushing Open the Door. Housing options: the impact of a 'housing and support' advisory service. by Ken Simons. ISBN 1 86134 259 4. Available from Marston Book Services, PO BOX 269, Abingdon, Oxon, OX14 4YN. Telephone 01235 465500. 2000.
    From £11.00
  • Home, work and inclusion. The social policy implications of supported living and employment for people with learning disabilities .1998. by Ken Simons. Published by YPS for the Joseph Rowntree Foundation.
  • Living Support Networks: an evaluation of the services provided by KeyRing by Ken Simons.
    From £23.90
  • Getting Involved in Choosing Staff by Ruth Townsley, Joyce Howarth, Pete Le Grys and Margaret Macadam. A resource pack for supporters, trainers and staff working with people with learning difficulties.
    £65.59
  • I'm not complaining but ... A flexible training resource on complaints procedures. by Ken Simons. ISBN 0 9530599 0 1. 1995. From £10.00
  • Still a Chance to Learn ? A report on the impact of the Further and Higher Education Act (1992) on education for adults with learning difficulties. By Margaret Macadam and Jeannie Sutcliffe. ISBN 1 872941 99 0.
    From 65p
  • Invisible Victims: crime and abuse against adults with learning disabilities by Christopher Williams. A full report including training material (for police, service providers and lay advocates) and policy recommendations. Email: post@jkp.com
    £22.99
  • Values and Visions. Changing Ideas in Services for People with Learning Difficulties. Edited by Terry Philpot and Linda Ward. £31.34
  • Residential Short-term Care Services. Book of photocopiable materials needed to carry out a full and detailed evaluation of a service or to simply review one aspect such as 'partnership with parents' or 'quality of care'. ISBN 0 11 321972 5 by Carol Robinson, Clive Weston and John Minkes.
    £29.00
  • Seen and Heard. Involving disabled children and young people in research and development projects by Linda Ward ISBN: 1 899987 48 7.
  • £6.50
  • Observing for Quality by Clive Weston, John Minkes and Carol Robinson. Observation Schedule contained in 'Quality in Day Services for Under-Fives' above but available separately, so it can be used as part of a full evaluation service or as a free standing tool. ISBN 0 11 321973 3. £9.00
  • Quality in Day Services for Under Fives. Contains a wide range of photocopiable materials, including questionnaires, interview and observation schedules, which allow information to be collected from staff and parents. ISBN 0 11 321971 7 by Carol Robinson, Clive Weston and John Minkes.
    £29.00
  • In their own right. The Carers Act and carers of people with learning disabilities. by Val Williams and Carol Robinson. ISBN 1 86134 231 4.
    From £6.98

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Online Documents

ThemeAuthor/sTitle
Advocacy

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Ruth Townsley, Anna Marriott and Linda Ward Access to Independent Advocacy: An evidence review (PDF, 1,301kB)(pdf file 1.3 MB)

Executive summary (PDF, 270kB) (pdf file 267KB)

Easy read summary (PDF, 1,505kB) (pdf file 1.47KB)

A framework for research on costs and benefits of independent advocacy (PDF, 1,103kB) (1.1 MB

Parents

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Beth Tarleton, Linda Ward and Joyce Howarth Finding the Right Support. (Full Report) (PDF, 511kB) (pdf file 511KB)
Beth Tarleton, Linda Ward and Joyce Howarth Finding the Right Support (Project Summary) (PDF, 76kB) (pdf file76 KB)
Beth Tarleton Providing the Right Support (Project Summary) (PDF, 324kB) (pdf file 324 KB)
Sexuality and relationships

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David Abbott and Joyce Howarth Press Release (PDF, 89kB) (pdf file 89KB)
David Abbott and Joyce Howarth Summary (English) (PDF, 67kB) (pdf file 156KB)
David Abbott and Joyce Howarth Summary (Welsh) (PDF, 68kB) (pdf file132 KB)
David Abbott and Joyce Howarth Easy to Read Summary (English) (PDF, 669kB)
(pdf file667KB)
David Abbott and Joyce Howarth Easy to Read Summary (Welsh) (PDF, 659kB)
(pdf file 660 KB)
David Abbott and Joyce Howarth Jan's Story. A photostory about a lesbian with learning difficulties. (PDF, 862kB)
(pdf file 844KB)
David Abbott and Joyce Howarth Phil's Story. A photostory about a gay man with learning difficulties. (PDF, 759kB)
(pdf file 738KB)
David Abbott and Joyce Howarth A booklet about challenging homophobia and heterosexism for people with learning difficulties and the staff that support them. (PDF, 879kB)
(pdf file 879KB)
Death Confidential Inquiry Team Reports
Disabled children

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Debby Watson, Mandie Lewis, Ruth Townsley, David Abbott and Alison Cohen. All Together Better. A guide for Families with a disabled child with complex healthcare needs.
(pdf file 6.42MB)
Ruth Townsley, David Abbott and Debby Watson Making a Difference? Exploring the impact of multi-agency working on disabled children with complex healthcare needs, their families and the professionals that support them. (PDF, 134kB) (pdf file 134KB)
David Abbott, Linda Ward and Jenny Morris Residential Schools and Disabled Children: decision making and experiences. (PDF, 35kB) (pdf file 36KB)
Debby Watson, Beth Tarleton and Anthony Feiler Full report on the findings of the research on the involvement of children with little or no verbal communication (findings from the first phase of the research - a national (England) survey of schools) (PDF, 538kB) (pdf file 530KB)
Debby Watson, Beth Tarleton and Anthony Feiler Summary of findings from research on the involvement of children with little or no verbal communication (PDF, 96kB) (pdf file 97KB)
Debby Watson, Beth Tarleton and Anthony Feiler I want to choose too - a resource for teachers and others for including primary school age children with little or no speech in decision-making (PDF, 1,328kB) (pdf file 1.29 MB)
Debby Watson, Beth Tarleton and Anthony Feiler Messages from the resource I want to choose too (PDF, 934kB) (pdf file 934 KB)
Duchenne Muscular Dystrophy

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David Abbott and John Carpenter Becoming an adult - Transition for young men with Duchenne muscular dystrophy (PDF, 902kB) (pdf file 902KB)
Craig McLean, Liam McLean and David Abbott Becoming a man - Life with Duchenne muscular dystrophy (PDF, 1,728kB). (pdf file 1.7MB)
Dr Shawn Sobers Being a Man - Artist's Statement (Office document, 21kB)
Guidelines for accessible information

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The Norah Fry Research Centre, RNIB , Black Health Agency, Jane Jones and Sue Thurman Information for all (PDF, 4,224kB) (pdf file 4225 KB)
Personalisation and direct payments

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Pauline Heslop, Val Williams and Helen Spandler Personalisation in mental health: A review of the evidence (PDF, 69kB) 
Pauline Heslop and Val Williams

 

Personalisation in mental health: Creating a vision, personalisation views (PDF, 112kB)
Personalisation in mental health: Breaking down the barriers (PDF, 118kB)
David Abbott and others Living It Up - Disabled Young People Speak their Minds... (PDF, 696kB)
(pdf file 696KB)

Living it Up - Disabled Young People Speak their Minds
(mp3. 2.05MB)

David Abbott and others Direct Payments for Young Disabled People (PDF, 61kB) (pdf file 62KB)
Skills for Support Research Team - Lisa Ponting, Kerrie Ford, Philippa Rudge and Val Williams It's about Respect - full report on the second stage of the Skills for Support project (PDF, 95kB) (pdf file 96KB)
It's about Respect - easy summary of the second stage of the Skills for Support project (PDF, 279kB) (pdf file 286 KB)
Getting Good Support - easy read summary of the Skills for Support survey (PDF, 150kB) (pdf file 151 KB)
A New Kind of Support - easy summary of the video stage in the Skills for Support project (PDF, 1,425kB) (pdf file 1426 KB)
Finance

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Val Williams, David Abbott, Jackie Rodgers, Linda Ward and Debby Watson Money, Rights and Risks. A scoping review of financial issues for people with learning disabilities in the UK (PDF, 810kB) (pdf file 811KB)
Val Williams, David Abbott, Jackie Rodgers, Linda Ward and Debby Watson Money, Rights and Risks. Financial issues for people with learning disabilities in the UK - summary (PDF, 326kB) (pdf file 327KB)
The interface between mental health and learning disability services

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Ken Simons and Oliver Russell. ‌ (pdf file 356KB)
Self injury

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Pauline Heslop and Fiona Macaulay Hidden Pain? Self injury and people with learning disabilities (PDF, 929kB)

Summary (PDF, 188kB)

Easy read summary (PDF, 573kB)

Short breaks

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Beth Tarleton Better for the Break? Support for children and teenagers with autistic spectrum disorders and their families. A summary of the findings. (PDF, 138kB) (pdf file 140KB)
Transition

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Pauline Heslop, David Abbott, Lisa Johnson and Robina Mallett Help to Move On. Transition pathways for young people with learning difficulties in residential schools and colleges Full report (PDF, 622kB) (pdf file 623KB)
Pauline Heslop, David Abbott, Lisa Johnson and Robina Mallett Help to Move On. Transition pathways for young people with learning difficulties in residential schools and colleges Summary (PDF, 69kB) (pdf file 70KB)
Pauline Heslop, Robina Mallett, Ken Simons and Linda Ward. Bridging the Divide. The experiences of young people with learning difficulties and their families at transition. A summary of the findings. (PDF, 190kB) (pdf file 193KB)
Beth Tarleton The Road Ahead. Information for young people with learning difficulties and their families at transition. (PDF, 104kB) (pdf file 104KB)

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Websites

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