MRC/NIHR Nodes for an integrated UK Rare Disease Research Platform information webinar

MRC and NIHR are establishing an integrated UK Rare Disease Research Platform that will connect the full spectrum of basic, clinical and translational research to the many stakeholders, including patients, industry and practitioners.

The platform will consist of multiple challenge-led, interdisciplinary research nodes, linked through a coordinating platform hub. The current call is for the nodes.

Nodes must:

  • provide coordination as part of a wider UK Rare Disease Research Platform
  • connect the full spectrum of basic, clinical and translational research to stakeholders
  • enable focused progress on defined topics.

Areas of focus: Node applications should be organised around an identified, tractable opportunity in rare disease research, for example in one of the following areas.

  • Cross-disease clusters or groupings
  • Development or application of a common tool, technology, research method or disease management approach
  • Cross-cutting issues

MRC and NIHR will fund around 10 nodes. The maximum cost that can be requested from the funders is up to £1.25 million, and we typically fund 80% of the full economic cost. Funding is available for five years.

Webinar: MRC and NIHR will be holding an informative webinar to support this funding opportunity on 7 September 2022 at 14:00. Register to attend the webinar.