Priory Road Lecture Theatre, Priory Road, BS8 1TZ
Chronic Fatigue Syndrome or ME is one of the most disabling illnesses in childhood but we know very little about it or how to treat it. This is a story about a controversial illness, the children who inspire research, progress so far and what the future holds.
Esther Crawley, is a Professor of Child Health at the University of Bristol, a Consultant Paediatrician and an NIHR Senior Research Fellow. She is the clinical lead for the Bath specialist CFS/ME service for children based at the Royal United Hospital in Bath. This service provides assessment and treatment for over 450 children and young people each year. Esther leads a research team which investigates the epidemiology and treatment of CFS/ME in children and adults. The epidemiological work uses the Avon and Longitudinal Study of Parents and Children (ALSPAC) and a large cohort of patients (~18,000 adults, and 2500 children) to study the causes and different types of CFS/ME. Her team have developed expertise in delivering complex hard-to-do trials. They have just started recruiting to FITNET-NHS which will be the largest RCT in CFS/ME. FITNET-NHS will test the effectiveness and cost-effectiveness of internet delivered CBT throughout the UK. She is also running a large trial investigating Graded Exercise Therapy for children with CFS/ME. Esther trained in Oxford, did her PhD in London and lives in Bristol when she is not sailing or skiing with her teenagers.
Please note that the Priory Road Lecture Theatre is in the Priory Road Complex on the corner of Woodland Road and Priory Road. The lecture theatre can be accessed via Woodland Road – main entrance doors next to 8 Woodland Road and an entrance offering level access to front of the lecture theatre. The lecture theatre can also be accessed from the main foyer/café of the Priory Road Complex (12 Priory Road) by proceeding to the right past PC lab 1D5
Free to attend, but booking will be required by RSVP to Julia Andrews, email: Julia.Andrews@bristol.ac.uk, tel: 0117 33 14005.
If you have not pre-booked your seat with Julia Andrews, but turn up on the night, you will be required to provide ID before being allowed into the lecture. It is advisable to pre-book with Julia if possible.
If you require additional support at any of these events, eg wheelchair access or sign language interpretation, please contact Carol Davies or Jan Hill at the earliest opportunity and we will endeavour to meet your requirements.