Measure Yourself Concerns and Wellbeing
MYCAW, Measure Yourself Concerns and Wellbeing, is an individualised questionnaire that has been designed for evaluating complementary therapies in cancer support care. It may be suitable for use in other settings too.
It is an adaptation of MYMOP. The Cavendish Centre for Cancer Care and Bristol Cancer Help Centre, piloted MYMOP at their centres and found that it had certain disadvantages. Consequently a multidisciplinary research group has designed and piloted this new questionnaire, called MYCaW.
As you will see it is similar to MYMOP and retains the patient-generated format and the seven point scales. However it uses the terms 'concerns or problems' instead of symptoms and it does not include a score for activity. It includes an extra open question on the follow-up form which asks 'Reflecting on your time with this Centre, what were the most important aspects for you?'
MYCAW is now being used routinely in several cancer support centres and has also been used in other settings. Publications about the development and validation of MYCaW are listed below.
Click below to download a User's Pack as pdf's. This contains the questionnaires and instructions for use.
There are two, very similar, versions of MYCaW according to whether the follow-up questionnaire is self-completed or is administered face-to-face. There is one questionnaire to use on the first occasion, and one to use on subsequent follow-up occasions.
If you decide to use MYCaW please register via the MYMOP registration form, mentioning that it is MYCaW that interests you.
Additional resources for users of MYCAW
MYCAW collects both numerical (quantitative) and free text (qualitative) data. Summarising and analyzing the free text data is quite a challenge but now there is help on hand! Click to access guidelines and categories (updated 2014) for use in your analysis:
Joliffe et al (2014) have published a new MYCAW validation study (see reference below)
Peace G,.Mannasse A. The Cavendish Centre for intergrated cancer care: assessment of patients' needs and responses. Complement Ther Med 2002;10:33-41.
Cooke H. Is the adapted Measure Yourself Medical Outcome Questionnaire an appropriate tool to evaluate the Bristol Cancer Help Centre's supportive programme? Dissertation. University of Exeter. 2000.
Paterson C, Thomas K, Manasse A, Cooke H, Peace G. Measure Yourself Concerns and Wellbeing (MYCaW):an individualised questionnaire for evaluating outcome in cancer support care that includes complementary therapies. Complementary Therapies in Medicine 2007;15: 38-45
Polley M, Seers H, Cooke H, Hoffman C, Paterson C. How to summarise and report written qualitative data from patients: a method for use in cancer support care. Supportive Care in Cancer 2007; DOI 10.1007/s00520-007-0283-2
Vaghela C, Robinson N, Gore J, Peace B, Lorenc A. Evaluating healing for cancer in a community setting from the perspective of clients and healers: a pilot study. Complementary Therapies in Clinical Practice 2007;13:240-249
Seers H E, Gale N, Paterson C, Cooke H J, Tuffrey V, Polley M. (2009) Individualised and complex experiences of integrative cancer support care: combining qualitative and quantitative data. Supportive Care in Cancer. 17:1159–1167
Harrington J E, Baker B S, Hoffman C J. (2012) Effect of an integrated support programme on the concerns and wellbeing of women with breast cancer: A national service evaluation. Complementary Therapies in Clinical Practice, 18:10-15
Jolliffe R, Polley M, Jackson S, Caro E, Weeks L, Seers H. The responsiveness, content and convergent validity of the Measure Yourself Concerns and Wellbeing (MYCaW) patient reported outcome measure. Integrative Cancer Therapies, 2014. (Epub ahead of print).