Browse/search for people

Publication - Dr Roisin McNaney

    Enabling the Participation of People with Parkinson's and their Caregivers in Co-Inquiry around Collectivist Health Technologies

    Citation

    McNaney, R, Vines, J, Dow, A, Robinson, H, Robinson, H, McDonald, K, Brown, L, Santer, P, Murray, D, Murray, J, Green, D & Wright, P, 2018, ‘Enabling the Participation of People with Parkinson's and their Caregivers in Co-Inquiry around Collectivist Health Technologies’., pp. 491

    Abstract

    While user participation is central to HCI, co-inquiry takes this further by having participants direct and control research from conceptualisation to completion. We describe a co-inquiry, conducted over 16 months with a Parkinson's support group. We explored how the participation of members might be enabled across multiple stages of a research project, from the generation of research questions to the development of a prototype. Participants directed the research into developing alternative modes of information provision, resulting in'Parkinson's Radio'--a collectivist health information service produced and edited by members of the support group. We reflect on how we supported participation at different stages of the project and the successes and challenges faced by the team. We contribute insights into the design of collectivist health technologies for this group, and discuss opportunities and tensions for …

    Full details in the University publications repository