Patient Experience Partnership in Research group (PEP-R)
In July 2010 we set up the Patient Experience in Research group (PEP-R) where researchers and patients meet and discuss research.
PEP-R group members have had, or are having, treatment for musculoskeletal health conditions such as osteoarthritis, osteoporosis and ankylosing spondylitis.
We now have three PEP-R groups:
PEP-R MSK (MUSCULOSKELETAL)
Meeting every two months the nine members of PEP-R use their expertise as service-users to help design, develop, refine and disseminate research projects. Examples of their work include enhancing recruitment literature and prioritising areas for future research.
Watch a short film about PEP-R. This film was made in August 2014 when the PEP-R group was a winner of the University of Bristol's 2013-14 Engagement Awards.
PEP-R members are also invited to join research project steering groups to give advice based on their direct experience of the topic under investigation.
In December 2013, five patients with experience of infection following joint replacement joined the INFORM PEP-R group.
We are also featured on the University of Bristol's Centre for Public Engagement website.
The work of PEP-R complements the Unit's ongoing patient and public involvement activity, which has included patient involvement in the design of a placebo hand-splint, published in the journal 'Health Expectations'.
We published an editorial on 'Involving Patients in Research: Considering Good Practice' in the Journal 'Musculoskeletal Care'. The editorial describes our evaluation of the impact of PEP-R on patients and researchers.
We have collaborated with North Bristol NHS Trust to design good practice guidance on patient and public involvement.
Please contact PEP-R for further information.