Public Involvement

Patient Experience Partnership in Research group (PEP-R)

In July 2010 we set up the Patient Experience in Research group (PEP-R) where researchers and patients meet and discuss research. 

PEP-R group members have had, or are having, treatment for musculoskeletal health conditions such as osteoarthritis, osteoporosis and ankylosing spondylitis.

We now have three PEP-R groups:

Three PEPR groups

PEP-R MSK (MUSCULOSKELETAL)

Meeting every two months the nine members of PEP-R use their expertise as service-users to help design, develop, refine and disseminate research projects. Examples of their work include enhancing recruitment literature and prioritising areas for future research.

Watch a short film about PEP-R. This film was made in August 2014 when the PEP-R group was a winner of the University of Bristol's 2013-14 Engagement Awards.

PEP-R members are also invited to join research project steering groups to give advice based on their direct experience of the topic under‌ investigation.

PEP-R INFORM
In December 2013, five patients with experience of infection following joint replacement joined the INFORM PEP-R group. 

PEP-R STAR
In September 2015, five patients with experience of long term pain after knee replacement joined the STAR PEP-R group.  We have made a short film about this work.

We are featured on the INVOLVE website as a case study and as a case study for training.

We are also featured on the University of Bristol's Centre for Public Engagement website.

The work of PEP-R complements the Unit's ongoing patient and public involvement activity, which has included patient involvement in the design of a placebo hand-splint, published in the journal 'Health Expectations'.‌‌

We published an editorial on 'Involving Patients in Research: Considering Good Practice' in the Journal 'Musculoskeletal Care'. The editorial describes our evaluation of the impact of PEP-R on patients and researchers.

We have collaborated with North Bristol NHS Trust to design good practice guidance on patient and public involvement.

Please contact PEP-R  for further information.

Around table group pic
evaluation info sheet
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