IMPPP NHS Digital Privacy Notice
Purpose of this privacy notice
Controller
Universities in the UK have a duty to ensure that it is in the public interest to collect and use person details from people who have agreed to take part in research. The University of Bristol will only use data collected as needed to conduct the study analysis.
Dr Rupert Payne is the data controller’s representative for this project. Dr Payne can be contacted via email; r.payne@bristol.ac.uk or via telephone 0117 331 4545. The University of Bristol has a data protection officer (DPO) who is responsible for overseeing questions in relation to this privacy notice. You can contact our Data Protection Officer at the University of Bristol on data-protection@bristol.ac.uk
The data we collect about you
The IMPPP research team may collect, use and store the following personal data for from study participants: date of birth, NHS number, postcode and gender.
Purposes for which we will use your personal data
We have set out below a description of all the ways the research team plan to use personal data, and the legal bases we rely on to do so.
Type of data being collected |
Specific purpose/activity |
Lawful basis for processing |
Date of birth NHS number Postcode Gender |
Identifying information is required to enable NHS Digital to establish linkage with Hospital Episodes Statistics (HES) identification codes and data relating to hospital usage by IMPPP study participants. Anonymised data for a period of 18 months to include the 6-month period prior to provision of consent up until the point of completion of the final study questionnaire will be collected from NHS Digital. Data will be processed by the University of Bristol. |
Article 6 (1) (e) necessary for the performance of a task carried out in the public interest Article 9 (2) (i) necessary for reasons of public interest in the area of public health Article 9 (2) (j) necessary for reasons of public interest in the area of scientific research |
The unique study identification code will be used by the studies analytic team to enable linkage of released data to other study data held at the University of Bristol for the purposes of data analysis. Linkage of the data released by NHS Digital with the study data held at the University of Bristol is necessary to ensure that the participants data is analysed within the study group (e.g. intervention or control group) to which they have been randomly assigned.
Disclosures of IMPPP study participant personal data
Data security
Data retention
Your legal rights
- Right to withdraw consent: where the lawful basis relied upon by the University is the data subject’s consent, the right to withdraw such consent at any time without having to explain why
- Right to be informed: the right to be provided with certain information about how we collect and process the data subject’s personal data
- Right to complain: the right to make a complaint to the Information Commissioner’s Office (ICO) or another appropriate supervisory authority.
If you wish to withdraw consent, please contact the research team via email at imppp-study@bristol.ac.uk.
To make a complaint about how researchers at the University of Bristol have handled your personal data, you can contact our Data Protection Officer who will investigate the matter. You can contact our Data Protection Officer at the University of Bristol via email at; data-protection@bristol.ac.uk or you can complain to the Information Commissioner’s Office via telephone on 0303 123 1113. Please see www.ico.org.uk for further information about making a complaint.
Research exemption
Source of personal data
Study participants are not required under a statute or contract to provide personal data and are free to withdraw from the study at any point.
Please note that we do not make use of automated decision making in relation to personal data.
Purpose of this privacy notice
Controller
Universities in the UK have a duty to ensure that it is in the public interest to collect and use person details from people who have agreed to take part in research. The University of Bristol will only use data collected as needed to conduct the study analysis.
Dr Rupert Payne is the data controller’s representative for this project. Dr Payne can be contacted via email; r.payne@bristol.ac.uk or via telephone 0117 331 4545. The University of Bristol has a data protection officer (DPO) who is responsible for overseeing questions in relation to this privacy notice. You can contact our Data Protection Officer at the University of Bristol on data-protection@bristol.ac.uk
The data we collect about you
The IMPPP research team may collect, use and store the following personal data for from study participants: date of birth, NHS number, postcode and gender.
Purposes for which we will use your personal data
We have set out below a description of all the ways the research team plan to use personal data, and the legal bases we rely on to do so.
Type of data being collected |
Specific purpose/activity |
Lawful basis for processing |
Date of birth NHS number Postcode Gender |
Identifying information is required to enable NHS Digital to establish linkage with Hospital Episodes Statistics (HES) identification codes and data relating to hospital usage by IMPPP study participants. Anonymised data for a period of 18 months to include the 6-month period prior to provision of consent up until the point of completion of the final study questionnaire will be collected from NHS Digital. Data will be processed by the University of Bristol. |
Article 6 (1) (e) necessary for the performance of a task carried out in the public interest Article 9 (2) (i) necessary for reasons of public interest in the area of public health Article 9 (2) (j) necessary for reasons of public interest in the area of scientific research |
The unique study identification code will be used by the studies analytic team to enable linkage of released data to other study data held at the University of Bristol for the purposes of data analysis. Linkage of the data released by NHS Digital with the study data held at the University of Bristol is necessary to ensure that the participants data is analysed within the study group (e.g. intervention or control group) to which they have been randomly assigned.
Disclosures of IMPPP study participant personal data
Data security
Data retention
Your legal rights
- Right to withdraw consent: where the lawful basis relied upon by the University is the data subject’s consent, the right to withdraw such consent at any time without having to explain why
- Right to be informed: the right to be provided with certain information about how we collect and process the data subject’s personal data
- Right to complain: the right to make a complaint to the Information Commissioner’s Office (ICO) or another appropriate supervisory authority.
If you wish to withdraw consent, please contact the research team via email at imppp-study@bristol.ac.uk.
To make a complaint about how researchers at the University of Bristol have handled your personal data, you can contact our Data Protection Officer who will investigate the matter. You can contact our Data Protection Officer at the University of Bristol via email at; data-protection@bristol.ac.uk or you can complain to the Information Commissioner’s Office via telephone on 0303 123 1113. Please see www.ico.org.uk for further information about making a complaint.
Research exemption
Source of personal data
Study participants are not required under a statute or contract to provide personal data and are free to withdraw from the study at any point.
Please note that we do not make use of automated decision making in relation to personal data.