Study questionnaires

As part of the study we are sending our participants and their family questionnaires at regular time points to gather outcome data. Please find copies of all our questionnaires below:

Participants are sent a questionnaire at baseline, 6 months and 12 months. We have three different versions of the questionnaire:

One for participants under 12 Questionnaire E (Office document, 352kB)

One for participants over 12 Questionnaire F (Office document, 377kB)

A reduced questionnaire, for participants who do not want to complete the full version Questionnaire D (Office document, 296kB)


Participant's relatives are also sent out a questionnaire at baseline, 6 months and 12 months. 

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