COVID-19: Making a difference
During 2020, our participants have been busy helping us understand more about COVID-19 by completing questionnaires and doing antibody tests at home.
Two COVID-19 questionnaires explored the impact of the virus and mitigation measures on our participants’ lifestyle, finances and family life as well as detailing COVID-19 symptoms and changes to their mental health.
We recently conducted antibody testing on almost 5,000 young people and their parents – which showed levels of infection in both generations, as well as revealing how many of our participants were asymptomatic.
Our COVID-19 participant data is available to researchers and feeds into Health Data Research UK reports which inform the government’s SAGE committee (see below).
Understanding more about immunity to COVID-19
The next step is to study how immunity to COVID-19 varies over time among participants in our study. As part of the UKRI funded UK Coronavirus Immunology Consortium (UK-CIC), we aim to learn more about the immune response to COVID-19 in a year-long data collection involving participants from both generations.
Over repeat visits to our clinic, we will seek to gather data to learn why some people develop severe symptoms and others do not and how the level of immune response changes depending on symptoms and over time. We will also investigate the long-term health effects – such as the condition known as Long Covid - where people are left struggling with chronic fatigue, breathlessness and other symptoms for months after an infection.
Participants who are eligible to take part will receive an invitation to attend via email in November, so please ensure your contact details are up to date.
Play your part
If you’re a participant, you can still get involved in our ongoing COVID-19 and other research – even if it’s been a long time since you’ve taken part in the study.
If you’re not sure whether you are (or have been) part of the study, or if you haven't done anything with us for a long time, please text your name and date of birth to 07772 90 90 90 or email us on firstname.lastname@example.org so we can check and update our records.
We need as many people as possible to take part in this research, so please don’t hesitate to get in touch if you have any questions about what’s involved.
We've put together a short guide outlining how your records are used in COVID-19 research.
What we’ve learnt so far
We had over 13,000 responses to our two questionnaires and almost 5,000 completed antibody tests - thank you to all our participants for your support. Read more about the key findings in these reports:
You can also hear from Dr Kate Northstone about what we've discovered so far (YouTube video).
Read more about our latest studies on our news page.
Antibody testing results
In October we conducted a COVID-19 antibidy testing study. Dr Kate Northstone talks through the results in the video below, and you can find out more in our report: Antibody testing report (PDF, 144kB)
Using our data and questionnaires
If you’re a researcher, you can read more about what’s included in our dataset and how to access it free of charge for both of the questionnaires through the links below:
- Wellcome Open Research data note for questionnaire one April - May 2020
- Wellcome Open Research data note for questionnaire two May - July 2020
- Wellcome Open Research data note for Generation 2 (G2) questionnaire May - July 2020
We can also send you more information about the questionnaires if you wish – please email email@example.com to find out more.
In addition, we're also managing a new questionnaire alongside Generation Scotland to help researchers worldwide use any population study to address COVID-19 issues. The Wellcome COVID-19 questionnaire is free, and validated for any biomedical or social science researcher. To request the questionnaire, please email firstname.lastname@example.org.
Policy and key findings
Our COVID-19 research has been mentioned in the following Health Data Research UK (HDRUK) updates for SAGE and UKRI Medical research Council /Department for Health and Social Care (DHSC):